The Relationship Among Children Born with a Congenital Heart Defect, Effects of General Anesthesia, and Special Academic Needs

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The Relationship Among Children Born with a Congenital Heart Defect, Effects of General Anesthesia, and Special Academic Needs, Is A Well-Researched Topic, It Is To Be Used As A Guide Or Framework For Your Research.

Abstract

I initiated this study due to experience in the public education system in one state in the United States. I noted a lack of understanding among educators on how to meet the educational needs of children born with a congenital heart defect (CHD) who hadundergone general anesthesia related to their CHD. A lack of communication between the medical sector and the educational world led to extensive delays in children receiving the educational support they needed to be successful academically. There were two primary exploratory questions that drove my study: 1.) Is there a relationship between children born with CHD and their being determined eligible for a program under the Individuals
with Disabilities in Education Act (IDEA) criteria? 2.) Is there a relationship between how long a child has been under general anesthesia and his or her being determined eligible for a program under IDEA criteria? Through my study, I concluded there is a relationship among children born with CHD, exposure to general anesthesia, and being determined eligible for a program under the IDEA criteria. I recommend that hospitals with a Pediatric Cardiology Specialty Department implement an Administrative Educational/Medical Professional position to assist families as early as possible in meeting not only the medical needs but also the academic needs in their child’s life.

TABLE OF CONTENTS

ABSTRACT ……………………………………………………………………………………………………….. iv
PREFACE …………………………………………………………………………………………………………….v
DEDICATION ………………………………………………………………………………………………….. vii
List of Figures ……………………………………………………………………………………………………….x
CHAPTER ONE: INTRODUCTION ……………………………………………………………………….1
Rationale……………………………………………………………………………..…….2
Goals ………………………………………………………………………………………………………………….. 4
Definition of Terms…………………………………………………………………….….4
Research Questions ………………………………………………………………………………………………..6
Conclusion…………………………………………………………………………………6
CHAPTER TWO: REVIEW OF THE LITERATURE ……………………………………………… 8
Congenital Heart Defect Defined ……………………………………………………………………………. 9
Educational Implications ……………………………………………………………………………..11
Anesthesia and its Effects on Learning…..……………..………………………..13
Conclusion ………………………………………………………………………………………………………… 16
CHAPTER THREE: METHODOLOGY ………………………………………………………………..17
Research Design Overview ………………………………………………………………………………….. 17
Participants ………………………………………………………………………………………………………… 18
Data Gathering Techniques ………………………………………………………………………………….. 18
Data Analysis Techniques………………………………………………………………..19
Autoethnography…………………………………………………………………….……20
Ethical Considerations……………………………………………………………….……20
Limitations……………………………………………………………………………….21
Conclusion .………………………………………………………………………………22
CHAPTER FOUR: RESULTS ………………………………………………………………………………24
Findings…………………………………………………………………………………………………………….. 24
Context.……………………………………………………………………………28
Culture……………………………………………………………………………..30
Conditions.…………………………………………………………………………32
Competencies………………………………………………………………………33
Interpretation ……………………..…………………………………………………………….35
Specific Learning Disability………………………………………………………..36
Other Health Impairment…………….………………………………………………..37
Autism Spectrum Disorder……………………………………………………….39
Emotional Disturbance……………………………………………………………42
Speech or Language Impairment…………………………………………………43
Visual Impairment, Including Blindness………………………………………….45
Deafness…………………………………………………………………………..47
Hearing Impairment………………………………………………………………48
Deaf Blindness……………………………………………………………………49
Orthopedic Impairment……………………………………………………………51

Intellectual Disability……………………………………………………………..53
Traumatic Brain Injury…..……………………………………………………….54
Multiple Disabilities………………………………………………………………55
Judgments…………………………………………………………………………….…..56
Recommendations…………………………………………………………………………57
Conclusion ……………………………………………………………………………….58
CHAPTER FIVE: TO-BE Framework ……………………………………………………………………59
Envisioning the Success To-Be ……………………………………………………………………………. 59
Context…………………………………………………………………………….59
Culture…………………………………………………………………………………..63
Conditions…………………………………………………………………………65
Competencies………………………………………………………………………65
Conclusions ……………………………………………………………………………………………………………………………. 66
CHAPTER SIX: STRATEGIES AND ACTIONS ……………………………………………………68
Strategies and Actions…………………………………………………………………………………………..68
Create a Sense of Urgency ………………………………………………………………………….68
Develop the Change Vision ………………………………………………………………………..70
Educate All Parties …………………………………………………………………………………….72
Conclusion ………………………………………………………………………………………………………….73
CHAPTER SEVEN: IMPLICATIONS and POLICY RECOMMENDATIONS ………… 74
Policy Statement ………………………………………………………………………………………………… 74
Analysis of Needs ………………………………………………………………………………………………..75
Educational Analysis ………………………………………………………………………………….76
Economic Analysis…………………………………………………………………………………….77
Social Analysis ………………………………………………………………………………………….78
Political Analysis ………………………………………………………………………………………79
Legal Analysis …………………………………………………………………………………………..80
Moral and Ethical Analysis …………………………………………………………………………81
Implications for Staff and Community Relationships ……………………………………………….82
Conclusion ………………………………………………………………………………………………………….83
CHAPTER EIGHT: CONCLUSION ……………………………………………………………………. 85
Discussion …………………………………………………………………………………………………………..85
Leadership Lessons ………………………………………………………………………………………………87
Conclusion ………………………………………………………………………………………………………….88
References …………………………………………………………………………………………………………..89
Appendices ………………………………………………………………………………………………………….96
Appendix A: Parent Survey Consent Form ……………………………………………………97
Appendix B: Strategies and Actions …………………………………………………………….99
Appendix C: Response to Intervention (RTI) ………………………………………………101
Appendix D: AS IS and TO BE Figures ……………………………………………………..102

Additional information

Author

Lorilynn Bowie

No of Chapters

8

No of Pages

114

Reference

YES

Format

PDF

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